Jack’s story is one of courage, heartbreak, and unexpected hope.

A boy full of energy and laughter, he went from being the life of his family to fighting an inoperable brain cancer that turned his world upside down.

But thanks to cutting-edge science and his own unbreakable spirit, Jack’s journey became a story of resilience and miracles.

Before the Diagnosis

Jack was always on the move.

From the day he was born, his parents Viv and Alex described him as “full of life.”

He loved running, jumping, playing—anything that allowed him to keep moving.

Sitting still simply wasn’t in his nature.

He was bubbly, adventurous, and curious, willing to try anything.

Friends and family often joked that Jack had more energy than anyone they knew.

But as he turned nine, things began to change.

The First Symptoms

At first, the changes were subtle.

Jack sometimes seemed distant—his gaze vacant, his mind elsewhere.

He complained about light sensitivity so severe that he couldn’t even look at an iPad screen.

Viv and Alex knew something was wrong.

Trusting their instincts, they took Jack to see a neurologist.

The Diagnosis

An MRI scan revealed a large tumour in Jack’s brain.

It was terrifying news, but there was a sliver of hope.

The tumour was classified as a low-grade glioma, and doctors were able to remove it through surgery.

The operation was a success.

Jack recovered well, and within three months he was back at school, laughing with friends, and enjoying life again.

Viv remembers:

“We thought: Thank you God, we are so lucky. The ordeal looked like it was over.”

For a while, life returned to normal.

The family felt as though they had dodged a bullet.

Relapse: The Nightmare Returns

Just over a year later, Jack woke one morning with a pounding headache.

Soon after, he began vomiting.

“That’s when the nightmare began,” Viv recalls.

They rushed him to hospital and barely left again.

This time, it was worse.

Jack was in constant agony, screaming in pain.

Through tears, he asked his mum:

“Why am I in so much pain? Why can’t they stop this pain?”

The words broke Viv’s heart.

The Second Operation

Surgeons attempted another operation.

But when they looked inside, there was no single tumour mass to remove.

Instead, the cancer was everywhere—stretching from the bottom of Jack’s spine to the top of his head.

Fluid was building on his brain, and the pressure caused unbearable pain.

Doctors began performing weekly lumbar punctures to drain the fluid and relieve the suffering.

But the relief never lasted long.

Jack, once a vibrant and unstoppable boy, was now bed-bound.

His family felt helpless, watching their child’s life shrink into hospital walls.

Running Out of Options

Doctors told Viv and Alex the words no parent wants to hear: there were few options left.

Traditional treatments were not working.

The cancer was aggressive, spreading, and seemingly unstoppable.

The future looked unbearably dark.

A Ray of Hope: The Zero Childhood Cancer Program

Just when it seemed there was no way forward, Jack was enrolled in the Zero Childhood Cancer Program, a groundbreaking initiative that tailors treatments to each child’s genetic profile.

Scientists studied Jack’s cancer at the molecular level, searching for vulnerabilities.

For the first time since the relapse, Viv and Alex felt a flicker of hope.

“We didn’t know what the outcome would be, but it gave us something to hold on to,” Alex explains.

Miracles in Motion

Under the program, Jack was given targeted treatment designed specifically for his cancer’s genetic makeup.

Slowly, the change became visible.

The relentless pain began to ease.

Jack, who had been confined to his bed, started to regain some strength.

He smiled more, laughed again, and even found moments of playfulness.

For Viv and Alex, each small improvement felt like a miracle.

They knew the road ahead was still uncertain, but for the first time in a long time, it wasn’t filled only with despair.

Life Today

Jack continues his journey, supported by doctors, researchers, and above all, his loving family.

His life is not without challenges, but the program gave him something priceless: time and quality of life.

Viv says: “The cancer changed everything, but it also showed us how strong Jack is. He inspires us every day with his bravery.”

The family has learned to live in the moment, to celebrate every laugh, every milestone, every precious day together.

The Legacy of Jack’s Journey

Jack’s story is not just about illness—it’s about courage, hope, and the power of science to change lives.

For families like Viv and Alex’s, the Zero Childhood Cancer Program has meant the difference between despair and possibility.

As Alex reflects:

“We haven’t looked back since. Whatever time we have with Jack, we’re grateful for it—and we’ll never stop fighting for him.”

Jack’s story reminds us all of the fragility of life, the strength of love, and the miracles that can happen when hope meets science.

Daisy Jane’s Brave Fight Against IGA Vasculitis.1288

I’ve been taking a little break from Facebook, trying to step back from the noise and focus on the everyday joys and challenges of parenting.

But today, I knew I had to share this because this sweet angel needs all the love, prayers, and support she can get right now.

Parenting, I’ve learned over almost four years, is a journey filled with constant surprises.

If it’s not one thing, it’s another.

One moment, you’re celebrating a small milestone, and the next, your heart is breaking over something you never imagined facing. And right now, our hearts are heavy. 😭

Thank you first to everyone who has reached out about Kit and her EEG.

I know many of you have been worried, checking in, hoping for good news. The only update I have is that Kit’s one-hour EEG showed no seizure activity, which was a relief.

I had planned to start working on a new game plan for her this week, but life had other plans for us.

Yesterday morning, we rushed Daisy to the hospital, and almost immediately, the doctors diagnosed her with IGA Vasculitis, also known as Henoch-Schönlein purpura. The words themselves are hard to hear.

Even when the doctors say it’s a “textbook case,” it doesn’t soften the blow for a parent watching their child suffer. My heart shattered seeing her go through this. 💔

For those who may not know, IGA Vasculitis is an autoimmune disease. It causes inflammation and bleeding in small blood vessels, leading to severe stomach pain, joint pain, and many of the other symptoms Daisy has been struggling with.

She has just started steroid treatment, and we are praying that it brings some relief soon. Right now, she hasn’t been able to keep anything down since Wednesday. She spends her days alternating between sleeping, crying in pain, and vomiting.

It’s heartbreaking to watch someone so small and full of life go through such intense suffering.

Daisy has always had a resilient spirit, but seeing her in pain reminds you how fragile childhood can be.

Through it all, though, she’s shown incredible bravery. Even when her body is weak, her spirit shines through. I am so proud of her, and I am constantly inspired by the strength she shows every single day. 🩷

This journey isn’t something we can face alone. I can’t express enough gratitude for our family, who stepped in immediately to help care for her younger sibling during this time.

And to my customers and friends, thank you for your patience and understanding while our focus is on Daisy.

Your support, messages, and prayers mean the world to us—they lift us up when hope feels fragile.

The road ahead is long. We are hopeful that the steroids will start working soon, and that we might be able to return home tomorrow.

But for now, our baby is still feeling very rough.

Each day is a careful balancing act, filled with small victories like moments when she manages to smile, or when she can sit up without immediate pain.

Those moments are precious.

They remind us that this illness, while difficult, does not define her.

Daisy is still our bright, joyful, and loving child.

Even as I continue my brief Facebook break in the coming days and weeks, I wanted to share this update.

My messages are always open if you’d like to send prayers, words of encouragement, or even just a kind thought. They truly do mean the world to us.

In times like these, it’s the support from our friends, family, and even strangers who take a moment to reach out that gives us strength to keep going.

Parenting is often messy, exhausting, and filled with unexpected hurdles.

But it is also beautiful, rewarding, and filled with moments that remind you why you keep going.

Watching Daisy fight through this illness, seeing her resilience, and knowing that we are doing everything we can to help her heal, has been a lesson in courage, hope, and love.

So for anyone reading this, please keep Daisy Jane in your thoughts and prayers.

Send her strength if you can. Celebrate the small victories with us.

And remember, every act of love—even a message, a prayer, or a simple wish for healing—makes a difference in ways we may never fully know.

Daisy has a long road ahead, but I have no doubt that with her courage, her family’s support, and the care of incredible doctors, she will shine again.

She will laugh, play, and smile, and she will do it with a strength that will inspire everyone around her. And until that day comes, we hold her close, we love her fiercely, and we continue to hope.